Saturday, March 28, 2009

Shaken, stirred and turned inside out

Yup. That's how I would describe my world now.

On Saturday the week before (21 Mar), I felt too tired to wake up but forced myself up to start my weekly housechores anyway. By 1pm as I was ironing Imran's school uniform, it started. I felt the floor "racing up" at me while I bent down to iron Imran's shirt. I ignored it, thinking my imagination got the better of me and continued to finish ironing.

As I hung my ironed blouse a few minutes later it came again. This time I felt the wardrobe "crashing down" on me as I looked up to hang my blouse. It didn't stop this time. I then collapsed near my bed. As I picked myself up to lie on my bed, there was this powerful sensation of my whole bedroom "rotating" and I had to close my eyes, thinking it would go away. It didn't. Instead the sensation got even more powerful and it turned into some kind of motion sickness (never had it in my 38 years of life) followed by a strong nausea and an anxiety attack, complete with palpitation.

I just laid there and tried to make some sense of what was going on. Then I remembered reading somewhere about vertigo and decided that this horrifying experience must be it!
I think this is a pretty good visual representation of the vertigo experience..

I called my sister Ita to tell her that I couldn't cook spaghetti bolognaise for her little birthday do in the afternoon at Mak's house. Thankfully Ita was very understanding and told me to rest and that she will cook instead. I finally did throw up buckets later (it was a relief but rendered me a useless vegetable) and then decided to see the neighbourhood GP. The locum doctor absolutely did not "register" vertigo (maybe he "ponteng" when the subject "vertigo" was being taught in class during his uni days) and kept asking if I had eaten (3 times! Dowh.. I think he wanted to make the connection between dizzy spells and my possibly low blood sugar) and when my last menses was (told him I know I'm NOT pregnant). I just felt like hitting him. Can't remember how he looked like because the doctor's room was spinning too. All I remember is his blank expression when I mentioned vertigo. Duh.

Thanks to the wonderful Dr. Chem (our magical homeopathic physician), I got on 3 different remedies at once. They did help, the thing is the vertigo attack came again on Monday 23 March and again the next day and another round on Wednesday 25 March. A GP refered me to an ENT specialist and so I got Sham to drive me to Selangor Medical Centre. I was diagnosed with another glamourously named condition called Meniere's Disease. Basically the endolymph fluid in my cochlear (inner ear) had burst due to pressure. The endolymph thingy is the one that helps us maintain our balance. Vertigo is its symptom. I'm scheduled for a hearing test on Tuesday 31 March. That's because Miniere's Disease can also cause progressive hearing loss. That got me freaked out!

The thought of losing my hearing scares me.. but better deaf than blind I guess. Oh well, I shall cross that bridge when I come to it.

The most wonderful thing happened in the midst of these horrifying experiences. Allah's way of cheering me up. Last Monday, I discovered that Imran was hanging the laundry to dry all by himself while I rested in bed. Sham was out working at the time. When I hugged and thanked him, he responded with "I love you, Mama!". Wow.. that was truly, truly priceless and memorable and I shall remember that moment for the rest of my life. :-)

I'm also worried that my bosses might think that this is a lame excuse to be on medical leave. Sigh!!! It really takes one to experience the horror and agony of severe vertigo, nausea, palpitation - all rolled into one - to understand what a 'sufferer' (?) goes through.

Inner Ear 101 : A diagram of the middle and inner ear. The fluid inside the inner ear's semicircular canals is called endolymph. And when the endolymph bursts, that's when I lost my balance and hence suffer from vertigo.

Well, I shall fight this thing called vertigo. I will not give up my independence (Sham is chauffering me around as a result of vertigo) easily and I will return to work soon, God willing!

To end my post here's some layman-friendly info on vertigo and dizziness.. enjoy!
VERTIGO and DIZZINESS 101 http://www.balanceandmobility.com/patient_info/dizziness.aspx

DIZZINESS AND VERTIGO
Patient Information: Dizziness and Vertigo

Dizziness is a broad term used to explain how we feel when our sense of balance is not quite right. The term encompasses a variety of sensations that can mean different things to different people. If you have ever been dizzy, you may have found it difficult to describe exactly how it made you feel. Some people who report feeling dizzy say they feel as if everything is spinning around them, or as if they are spinning or turning themselves. This is what doctors usually mean when they refer to vertigo. Others describe feeling wobbly or unsteady as if they were on a boat. And still others may describe their dizziness as a feeling of "floating", lightheadedness or "giddiness".
Dizziness can be caused by a number of different factors, including a variety of problems within the balance control mechanism itself. How we control our balance is a complex process involving many different parts of the body. This process, as well as the physical problems that can develop, is described under
"How You Control Your Balance?"
Dizziness Disorders
Dizziness or vertigo can be caused by a disturbance in a particular part of the inner ear - the vestibular system. This is the part of your balance system that provides your brain with information about changes in head movement with respect to the pull of gravity. When your vestibular system is not working properly, the result may be dizziness, vertigo, imbalance, disorientation and possibly nausea and vomiting. Some specific disorders known to cause dizziness and/or vertigo are listed below in alphabetical order (I'm putting my disorders in red):

Acoustic neuroma is loosely defined as a tumor on the nerve from the inner ear to the brain. Patients with this disorder may experience a gradual hearing loss, ringing or buzzing in the ears and dizziness. A sensation of pressure and fullness may also be present.
Arteriosclerosis, a hardening or narrowing of blood vessels that supply blood to the brain, may cause decreased blood flow, resulting in dizziness.

Benign Paroxysmal Positional Vertigo (BPPV) is a balance and dizziness disorder caused by a problem in the vestibular system of the inner ear which forms part of the balance organs. Small particles or crystals become detached from their normal location in the inner ear and interfere with the normal function of the vestibular system. As the name indicates, the vertigo, which can be intense, comes on suddenly following certain movements of the head. This type of vertigo comes and goes and, if left untreated, may be recur for years.
"Central" or neurological vertigo refers to dizziness that results from problems in the balance centers of the brain, rather than the ear. This type of dizziness is generally much less common than dizziness caused by inner ear problems. Strokes, multiple sclerosis, brain tumors or cysts and deformities of the upper spine or the back of the brain are all possible causes.
Hyperventilation can cause temporary dizziness and sometimes occurs when you are exercising strenuously or if you hold your breath when you are under stress.
Labyrinthitis is an inflammation, usually caused by a virus, of the labyrinth, the part of the inner ear that contains the organs of balance.
Meniere's disease is a condition in which repetitive attacks of vertigo are accompanied by pressure in the ears, buzzing or ringing, and partial hearing loss that can fluctuate during an episode.
Osteoarthritis, a joint disease, can affect the neck or cervical area of the spine. Openings in the neck vertebrae contain arteries, which supply the brain with blood. When these openings narrow as a result of osteoarthritis, blood flow to the brain is restricted, resulting in dizziness.
Ototoxicity is caused by exposure to, or ingestion of a particular substance which damages the auditory and inner ear system. Ototoxicity may result in irreversible damage to hair cells in the inner ear and/or vestibular system, which may cause vertigo, vision problems, hearing loss, gait unsteadiness and imbalance.
Peripheral fistula is a leakage of inner ear fluid to the middle ear. It can occur after a head injury or physical exertion or without a known cause (rarely).
Peripheral vestibular disorders refers to all forms of dizziness caused by inner ear problems, including BPPV, labyrinthitis and Meniere's disease. The term is commonly used when a doctor knows the problem is in the inner ear, but is unable to be more specific.
Post-traumatic vertigo is dizziness resulting from a head injury, concussion or whiplash.
Postural hypotension is indicated by symptoms of lightheadedness or blackouts, and is typically experienced when rising from a lying or sitting position.

Tinnitus
is buzzing or ringing in the ears and can occur with dizziness or may be a symptom by itself.
Vascular vertigo is dizziness caused by problems with the blood supply to the inner ear or the balance centers of the brain. This can occur in people who suffer from migraine or those who are overweight, smoke, have high blood pressure or don't get enough exercise.
Vestibular neuronitis is an infection of the vestibular nerve, generally viral.
Viral labyrinthitis is a viral inflammation of the inner ear. It causes dizziness/vertigo which may last days or weeks, usually following a cold or flu.

Common Myths About Dizziness
Dizziness is one of the leading patient complaints reported to doctors, second only to lower back pain. Historically, it has been very difficult to determine the cause of dizziness symptoms, but medical advances in the last twenty years have significantly improved the diagnosis and treatment of dizziness disorders. Because dizziness and/or vertigo can be so difficult to diagnose, however, a number of erroneous "causes" are often incorrectly assigned to symptoms of dizziness.

Myth: "Your dizziness is caused by anxiety; you just need to relax."
Fact: While someone with dizziness may be feeling anxious about their dizziness, which can magnify the unpleasant sensations, anxiety is not the underlying cause for the dizziness. If you are suffering from persistent symptoms of dizziness and/or vertigo that do not go away within a reasonable amount of time, it is a sign that there is something wrong and you should consult with a qualified clinician.

Myth: "Your dizziness is caused by your imagination and it's only in your head."
Fact: While you may find it difficult to describe your symptoms to your friends, family or doctor, your symptoms should not be discounted as imaginary. Your feelings of dizziness or unsteadiness are quite real and are a symptom of an underlying problem.

Myth: "Your dizziness is just part of getting older."
Fact: This is not true. Dizziness can be the result of a number of factors including injuries, degenerative diseases and other physical ailments, as explained under
"How You Control Your Balance." Elderly patients who suffer from dizziness, are not the same as their healthy, age-matched counter parts. In fact, symptoms of dizziness are not normal at any age and are a sign that there is something wrong.

Myth: "Your dizziness is simply a hormone imbalance."
Fact: Someone may have a hormone imbalance due to a variety of physical factors, which can cause nausea, fatigue, or "hot flashes", but a hormone imbalance per se does not usually result in symptoms of dizziness.

Friday, March 20, 2009

My Beautiful Imran

This is my all-time favourite shot of Imran. He was about 3 years old then. We were waiting for our turn to see the paediatrician at Damansara Specialist Hospital, he had fever at the time :-)

Holy Cow! It has been THAT long since my last post. Yes I've been real busy lately.

Lately too, I've been noticing that Imran has progressed substantially these few months and I'm simply ecstatic!
As you may know, Imran is autistic and he goes to public school with a special education department. He's turning 9this year. Of course it would be unfair for me to compare him to a normal kid his age. So you need to understand that he is learning at his own pace.

He hasn't been going to speech and occupational therapies for over a year now. Partly because Sham and I have gotten too busy. Partly also because it's frustrating to see different therapist each time we go for our appointments. Imran gets agitated and uncooperative when he sees a different therapist. It is difficult for him to adapt to change, you see.

So, we have been sending Imran for bio resonance therapy at this naturopathy clinic in PJ. The clinic is run by this amazing family who provides naturopathy healthcare. Yes they charge a substantially for their services but they give back to the underprivileged by giving FREE therapy to special kids. Fantastic!

Through bio resonance, Imran is detoxified and healed. Alopathic practitioners (your usual GPs) will not recognise the benefits of naturopathy and claim that the effects of bio resonance are unsubstantiated. Well, that's too bad because the therapies that Imran has undergone are showing results!! On top of that, the homeopathic remedies that Dr. Chem (a wonderful family friend) recommended have made a big difference as well.

Having a special child also means that you need to give him more attention. So, an abundance of attention (I think he is still lacking that, since I'm working. But I'm trying my best in managing my time) and prayers for Imran has tremendously helped him.

As I have said in my earlier posts, I do not have high expectations. All I want is for him to be happy, independent, self-sufficient and love Allah and His Beloved Ones. And I truly hope I will be around to see my beautiful Imran achieve all that.